Presentation conference AA.pptx Presentation conference AA.pptx
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IoW1.pptx IoW1.pptx
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IOW2-slides.pptx IOW2-slides.pptx
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Transitional Care to adult care 2019.ppt Transitional Care to adult care 2019.ppt
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IOW2-slides.pptx IOW2-slides.pptx
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UCLH_GOSH_Fetal_Surgery_June19 (1).pptx UCLH_GOSH_Fetal_Surgery_June19 (1).pptx
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RWSpina Bifida Long Term outcomes (1).pptx RWSpina Bifida Long Term outcomes (1).pptx
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A huge thank you to all those who made the conference such a success .  The speakers informed and educated, the facilitators enabled everyone to benefit from the table discussions, and the venue was accessible and provided all that we needed.  Thank you, too, to the team from IW ASBAH who made it all possible, and Nicola and Clare from Myliferaft, Duncan and Joy from Mountbatten,and Teresa from Lifelight, and Helen who was quietly helpful in every area.

The presentations are now uploaded and we hope you find them useful.  We will also make sure that the data is forwarded for CPD and you will hear directly from the CPD people with your certificates.

Thank you for the very positive feedback - it makes it all worthwhile.

We aim to follow up - and will be in touch with you if we have your contact details to let you know early next year about further events.

Contact us if there is anything you need to know.


50th Anniversary Conference Programme

Spina Bifida & Hydrocephalus Association

25th June 2019
Cowes Yacht Haven, Isle of Wight

Living with Spina Bifida & Hydrocephalus – Shaping the future 

9.30am - 10.00am               Arrival for 10am start, tea/coffee etc

10.00am - 10.15am             Anne Axford - Chairman

                                               Opening Speech - Looking back to 1969

10.15am - 10.45am             Margo Whiteford - Dr Margo Whiteford CBE, Chairperson of Spina Bifida Hydrocephalus Scotland & President of International 

                                               Federation for Spina Bifida and Hydrocephalus

                                               General overview, Inheritance, Prevention, etc

10.45am - 11.00am             Tea/Coffee Break 15 minutes

11.00am - 11.45am             Round Table discussions with facilitators:

                                               Group 1 - Hydrocephalus

                                               Group 2 - Continence

                                               Group 3 - Fortification

                                               Group 4 - Chiari Malformation and Tethered Cords

                                               Group 5 - Treatments - e.g. Lymphoedema

                                               Group 6 - MyLifeRaft

                                               Group 7 - Fetal Surgery with input from UCLH Team    NEW!

11.45am - 12noon              Plenary feedback

12noon - 1.00pm                Lunch


Latest Developments in Diagnosis and Treatment of

Spina Bifida and Hydrocephalus

1.00pm – 2.00pm                 Keynote speaker: Margo Whiteford, Keynote Speaker

                                                Spina Bifida - Not The End, Just the Beginning

2.00pm – 3.00pm                 Dr D J Richard Morgan, Consultant Physician, Chelsea & Westminster Hospital, Multidisciplinary Clinic

                                                Transitional Care to Adulthood & Beyond - 30 years experience

3.00pm – 3.20pm                 20 minute tea/coffee break

3.20pm – 4.00pm                 Gill Yaz, Health Development Manager – SHINE & Ann Wing, Spina Bifida Chief Nurse Specialist & Multidisciplinary Clinic Co-ordinator,

                                                Chelsea and Westminster Hospital

                                                From birth, through childhood and into adulthood - everything you need to know about….. Continence – the good the bad and the ugly

4.00pm – 4.45pm                 Mr Ryan Waters, Consultant Neurosurgeon, Southampton Children’s Hospital

                                                Postnatal Treatment and Long-term Outcome of Spina Bifida

4.45pm – 5.00pm                 Feedback forms